" My husband has a history of Crohns and had the majority of his l ..."    read more »

" My husband has a history of Crohns and had the majority of his large bowel removed. Three weeks ago during a routine colonoscopy significant inflammation was discovered. The doctor recommended steriod suppositories with a check three weeks later to see if stronger drugs were needed. Husband refused and started on LDN 4.5 mg before bed and also simultaneously started on the specific carbo diet. Just had a re check Dr floored absolutely normal healthy colon, no sign of inflammation."

" I was diagnosed with a stage four glioblastoma (brain cancer) in ..."    read more »

" I was diagnosed with a stage four glioblastoma (brain cancer) in February of last year [2011]. After a full course of chemo and radiation, in mid November, I learned about an inexpensive prescription medication, low dose naltrexone. Prior to starting this medication, I was deteriorating. I required a walker and could go only short distances. I had significant memory loss. With all the standard treatment, I was given 10 months to live. The average prediction is 14 months, even after excision, 3.2 cm of tumor remained. After I learned about and obtained a script for low dose naltrexone I gradually regained my ability to walk normally, without a walker, my thinking became clearer. In short, I regained function. I take no other prescription drugs except LDN. I'm also taking other natural treatments which have helped improve my immune system as well. Here is what I'm doing to treat my cancer with LDN first: https://www.facebook.com/note.php?note_id=402843286398627 — Laura Arasmo, RN"

" I became ill in late 2004, in and out of hospital, several surger ..."    read more »

" I became ill in late 2004, in and out of hospital, several surgeries, and some mis-diagnoses. Then, early in 2007 it was finally determined I had some form of IBD. They initially thought it was Ulcerative Colitis, and that a resection would solve my problems. It wasn\'t, and the surgery didn\'t make it all go away. In fact, it came back with a vengeance, worse than ever. I took the usual meds; pred, flagyl, 5-ASA, AZA, etc., but with no lasting success. My last traditional med, AZA, put me in the Emergency Room. I was running out of options. Then I read an article about treating Crohns with low dose Naltrexone. I prepared to do battle with my doctor to force her to place me on it; but to my surprise and relief, based on the situation I was in and my lack of options, she agreed, supported and helped me. She even arranged for a local pharmacy to compound it for me. That was in November of 2007. I chronicled my early days on LDN at the Crohn\'s Forum website, so others might benefit from my experiences. That was over 4 years ago. LDN stopped my Crohns in its tracks. Today, I\'m working, living a good life, a relatively normal life thanks to LDN. When my GI examines my intestines, all that remains of my once very aggressive Crohn\'s is extensive scar tissue and microscopic indications that the Crohn\'s is still there. My success with LDN prompted my GI to try other patients on it. Now there are a handful of us here. There were two main reasons I wanted to risk taking LDN. First, it offered all the benefits the other drugs did without the side effects they carried. Second, I wanted to play guinea pig (or lab rat, if you will) so if my children ever developed this disease, the ground work would have already been done. Figured I might as well share my story. I\'ve been playing lab rat for over 4 years now, and have never felt better... (least ways, not since before I first became ill with Crohns.) That\'s my story... Kev"

" In about 2004 I started having pain in my feet, mostly around my ..."    read more »

" In about 2004 I started having pain in my feet, mostly around my toes, and mostly after lengthy standing or walking. I wrote it off to age. After a few months, the pain went from intermittent to constant, and I consulted my physician. He initially treated me for a fungal infection, with no relief. Then referred me to a podiatrist, who diagnosed an abnormally high instep and tight achilles tendon, and prescribed exercises. After several weeks of no improvement, I returned to my physician, who then tested my Rheumatoid Factor, which was at 127. I was referred to a Rheumatologist, who put me through various trials on methotrexate at various dosages, with no relief. In 2007 he added Remicade by infusion, which brought some improvement, but very little. I continued with inflammation, swelling of my joints, extreme fatigue, etc. In Summer of 2010, I was having a difficult flare up of my RA symptoms, and I was very frustrated with the lack of results from the basically very toxic meds I was taking. I started my own internet search and after a few false starts, I found Low Dose Naltrexone. As I read the information, I was struck by how enthusiastic the patients were who were trying it. I printed out the information and took it to one of the doctors I work with. She read it and told me it would absolutely work for me. I started on 4.5 mg of LDN immediately without titrating up, and after only 4 days, I woke up with no need for pain medication. Over the past 11 months I have continued to improve. I have encouraged several others to try it, and several have."

" I was on the road to having sinus surgery when I decided to star ..."    read more »

" I was on the road to having sinus surgery when I decided to start LDN. I have chronic sinus and was running low grade temp (up to 99.5 at night) every day. My arms were also starting to tingle every evening after work. My allergist felt like my problem was more of an immune problem than just allergies/sinus so he ran some immune system tests that showed nothing but completely normal numbers. I asked my internist for LDN - he does not believe in it but allowed me to try it and for that I will always be grateful! The allergist said it would probably be 10 years before any specific immune system problem showed up. I have RA in my family history so I was very concerned about that. I started at 3 mg 3 months ago. I am on less and less allergy meds all the time and have been able to take less stomach meds since starting LDN esp after I started the transdermal cream. My sinuses generally feel clear most of the time but I do still have to be very careful what kind of environment I'm in and stay out of the wind all the time. My low grade temp disappeared completely after the first dose and the tingling arms stopped very quickly as well. I love LDN!!"

" I had severe reactive hypoglycemia for years and it was getting m ..."    read more »

" I had severe reactive hypoglycemia for years and it was getting much worse after my hysterectomy. I don't know if that was a coincidence or not. In any case, I no longer have ANY symptoms and my prognosis is no longer "you'll probably be diabetic like your grandmother, mother and sister". I am very happy that I am able to eat fruit again! Prior to LDN I was unable to eat more than 1/2 medium sized fruit without blood sugar issues. :) D.G.K. "

" Our son experienced a full recovery from rrms on ldn. He was diag ..."    read more »

" Our son experienced a full recovery from rrms on ldn. He was diagnosed at age 31 but as is often the case,in hindsight his first episode likely occured at age 19 when he had a brief episode of not being able to speak followed by numbness from the waist down, foot drop and optic neuritis. am a nurse and earned about LDN from an MS patient I gave B12 shots to. We checked it out at Vanderbilt University at the 2007 conference where we met 150 others who also had success stories. He never took steroids, interferons or Copaxone. He started the LDN at age 36. It started to work the first week with no side effects for him, not even the common first few week sleep problems. He has not had any disease activity from that first week on. He contines on 4mg at bedtime. He works 40 to 60 hour weeks and is very avtive physically and leads a busy life. God Bless all of you for getting the word out and I am right there with you. "

" I have been ill with CFS and Fibro for years. I was diagnosed in ..."    read more »

" I have been ill with CFS and Fibro for years. I was diagnosed in 1998 but had been sick for at least a decade before that. I am currently taking .5mg LDN in the morning and 3mg at night and "playing" with twice a day dosing. Here is the short story. I now have friends, I now volunteer, I now am able to go to the gym. I can participate in life and not have to come home and get in bed for the rest of the day and night. My pain is probably 85% controlled, my energy is up markedly and I am enjoying being alive again. Before LDN, I was not sure I would ever enjoy anything again. I have gotten two doctors to prescribe it to others and now spend much of my time helping people to start taking it and get their lives back."

" LDN is utterly miraculous. I was house-bound, unable to clean cer ..."    read more »

" LDN is utterly miraculous. I was house-bound, unable to clean certain parts of my house without getting very ill. I was ordered not to touch the toilet or floor. I took antibiotics probably 1/3rd of the year and had recurring pneumonia. Flu would last 6-8 weeks, and a cold 3-4 weeks. I couldn't even shower whenever I wanted - I had to nap afterward to recover. I couldn't raise my arms to fix my hair. I had severe migraine several times a week. I couldn't do much physical or social activity and if I did I would be in bed for a day or two. Just being around people would put me to bed, and if someone had mental or emotional issues around me I'd get a bad migraine. I could not shield myself emotionally or physically from the effects of my own stress or other people's stress. Exercise caused me extreme muscle pain and tightness - on a par with Torticollis. Of course, nobody could live like that without a measure of depression, and I had thoughts of wanting to die all the time, feeling like I could not suffer that amount of pain much longer. My diet was extremely restricted - I reacted to everything, especially if it was 'prepared'. Today I can eat any fresh, natural food I wish, fruit several times a day, and even 'prepared' foods once in a while without issue. I am almost back to the level of health I had around 1987, except for mild recurring shingles and prodrome. I do still have to take SOME other medications (like Elmiron for I.C.), but they work so much better with LDN! 95% improvement. I can exercise vigorously as much/often as I wish. Severe Reactive Hypoglycemia -- 99% improvement. I have absolutely no symptoms. Mast-cell Asthma and Allergies -- 99% improvement. Stopped ALL allergy and asthma medications after 3 months on LDN and haven't used them since. Interstitial Cystitis -- 65% improvement in bladder capacity. I have RAISED my LDN dosage to 5.0 mg on advice, and added 2.0 mg in the morning for split-dosing."

" I am now taking 3.0 mg.LDN in the a.m. and my pain in between m ..."    read more »

" I am now taking 3.0 mg.LDN in the a.m. and my pain in between my shoulder blades and my hip pain are gone. Also another benefit obtained is that my hormones are working better, so now I can cut my hormone therapy in half. I still have chronic fatigue, but I am working on that issue with my Holistic Doctor. Pat "

" I just had to share with you that I found this site and was so h ..."    read more »

" I just had to share with you that I found this site and was so happy, because I found out I can take the LDN in the morning. I have been trying to get my body used to taking the LDN at night, but I have been having insomnia and vivid dreams which can be a side affect. No one told me that I could take the LDN in the morning. So, when I read on this site that I could take it in the morning, I was thrilled. So, tonight I will not take a pill, and hopefully I will be able to sleep. Then, tomorrow will be the first day I will take a pill in the a.m. I only take 1.5 mg. because of the insomnia and vivid dreams occurred even more when I tried to take 3.0. The good news is that when I get out of bed in the morning, I do not have the pain that I used to have. I will write an update in a few weeks after my trial with taking it in the a.m. Pat "

" I had restless leg syndrome. It woke me up every night. Since sta ..."    read more »

" I had restless leg syndrome. It woke me up every night. Since starting the LDN, I no longer have this problem. I am so thankful for the relief. LDN is truly amazing! I will never stop taking it because it is working to keep my immune system in balance. I need that in this world where toxins abound. What do you have to lose? I was sick for years and am now getting better. I am working on getting my adrenals in order and detoxing my liver. After that, I will be doing the Iodine Protocol. For now, I take the supporting supplements because even though I can't take the Iodine right now, I know the accompanying supplements are very helpful to me. I love LDN and would recommend it to anyone! And everyone!"

" Here is a link to my MS, TM and LDN Story. I have been on LDN for ..."    read more »

" Here is a link to my MS, TM and LDN Story. I have been on LDN for over 5 yrs and still doing great. http://crystalangel6267.webs.com/mystory.htm"

" Diagnosed with Hep C 1998 (contracted much earlier) and since 199 ..."    read more »

" Diagnosed with Hep C 1998 (contracted much earlier) and since 1995 the measurements of ALT (160) and AST (110) have been very high. Started LDN 11/2009 and as of 1/15/2011 ALT is 54 and AST is 40. These are normal readings. I have done nothing differently for the past 10 years except the 1 year on LDN. I have no explanation other than LDN. In addition the RA in my hand which was bent and painful is now straight and without pain."

" I started LDN for fibromyalgia on March 22, 2010... a new birth ..."    read more »

" I started LDN for fibromyalgia on March 22, 2010... a new birth day of sorts. I was fearing I would need to end my career as a research nurse and go on disability before I started LDN. Now I am pain free most days, but have had other benefits, as well. My blood pressure returned to normal (after decades on Diovan), my gingivitis spontaneously healed and when I had my eye exam testing showed I no longer need reading glasses. I have been wearing trifocals for 15 years. My distance vision did not change but over time, I've had to take my glasses off to read. LDN and restorative sleep have done wonders for me:)"

" Lupus is a sinister autoimmune disease that uses inflammation to ..."    read more »

" Lupus is a sinister autoimmune disease that uses inflammation to destroy organs, skin, and eventually your mind. I have been using LDN for about a year now. It helps. Many of my symptoms are similar to MS, and some not. Some of my issues mimic rheumatoid arthritis. The bottom line for me, is that no other treatment has been effective beyond masking symptoms. I don't understand why LDN is treated as some sort of "alternative" treatment. Maybe because it is an old drug and available cheaply. I am not only a patient, but a Registered Nurse. I know the games that go on with new drugs, cute little drug reps, and greedy doctors. Sad really. This (LDN) may be the answer for so many; including lupus. Don't forget lupus. "

" I started LDN 8 months ago for fibromyalgia and "got my life back ..."    read more »

" I started LDN 8 months ago for fibromyalgia and "got my life back". Before LDN I feared I would have to go on disability, but this week I got an outstanding appraisal at work. After 5 months on LDN my blood pressure started dropping. I had been on Diovan for hypertension for 20+ years. After discussing this change with my doctor, I stopped my BP medicine and my BP has remained normal. Another gradual change I've noticed is that my gingivitis has spontaneously healed over time. I no longer have any bleeding gums and they are healthier than they've been in decades. Before LDN, I could not hold my arms up to brush my hair. After 8 mos on LDN, I'm enjoying long hair that I can now care for. The restorative sleep I get with LDN is working wonders for me. I know many others with FM/CFS taking LDN, with impressive results. Some have returned to work or activities that they were unable to do as their illness progressed."

" In 1998 at the age of 35, i developed severe wrist tendonitis, 2 ..."    read more »

" In 1998 at the age of 35, i developed severe wrist tendonitis, 2 weeks later I tore the left rhomboid. these two tendon "injuries" were much too serious for what I did to cause them and didn't really heal. the wrist needed cortisone, the upper back years of PT, ultrasound, and triggerpoint injections. In 2000, my SI joint also became a big problem, would misalign often, creating low back spasms and piriformis syndrome. PT and cortisone to the SI joint helped. Over the next few years, was on vioxx, causing edema, making the inflammation worse. My feet were so bad I could not walk without icing them. I was getting a lot of help from PTs and a physiatrist, stopping vioxx helped more, but had to move out of state and start the process again of finding doctors. The first three years here, all my symptoms were manageable. Then in the summer of 2006, I pulled a tendon/ligament attachment at the trochanter such that I could barely walk for ~5 months and could do no exercise for a year, I did this by carefully stretching, per doctors orders. Two weeks later, I tore a ligament in my left ulnar wrist, pouring water from a pot into the sink; could not use that hand for 2-3 years, needed cortisone and PT. All of these "injuries" and other tendonitises and torn tendons/ligaments would take months or longer to heal, with the help of PTs and doctors. Was finally diagnosed with undifferentiated spondyloarthropathy this fall, 2010, after 12 years of no diagnoses or misdiagnoses from rheumatologists. Since this form of spondyloarthropathy does not show in blood tests and does not show much in scans, it is hard to diagnose and even harder to be approved for drugs beyond NSAIDs, which cause edema and gastritis in me. Was able to find a doctor to prescribe LDN last fall. It does not prevent inflammation in me, however, when something does become inflamed, instead of months to years to heal, it now takes days to weeks.... and best part, no discernible side effects."

" Just an update on my NSCLC cancer story, first posted in Feb 20 ..."    read more »

" Just an update on my NSCLC cancer story, first posted in Feb 2010, I am still here, had a brain scan a few weeks ago which came back NED, I am now well over four years since diagnosis.....The only bad thing came from the radiation. nothing bad from LDN, only good! Celia"

" I Have Sjorgen's and started taking LDN 3 months ago hoping it wo ..."    read more »

" I Have Sjorgen's and started taking LDN 3 months ago hoping it would help the pain I have in my feet and legs (I have peripheral neuropathy as a result of Sjorgen's). To my surprise I noticed within a few weeks my mouth was less dry during the night. I still have no relief from the neuropathy but I believe it can take up to 3 - 6 months, I would encourage anyone with Sjorgen's to try LDN!"

" I've been suffering from Lyme disease for over two decades, and w ..."    read more »

" I've been suffering from Lyme disease for over two decades, and was diagnosed in January 2008. I started taking LDN (3 mg, fast release) on May 13, and the next day I woke up WITH NO PAIN in my body. I could not even remember the last time I experienced a pain-free day. At first I thought it was the famous placebo effect, but the following day was the same: no pain in my joints, my bones, my muscles. I also noticed an increase in energy and stamina, and my overall mood was better. Suddenly, the future didn’t appear so gloomy; I was able to picture myself working full time again, making projects, leading a “normal” life. This has come with a price, though: I have developed insomnia. I’m hoping this side effect will subside with time. Although I’m sleep deprived, I wake up earlier than I used to (without the help of the alarm clock), and I’m inhabited by an unusual sense of joy. I also feel more alert, ready and eager to tackle the day. Not sluggish anymore, and not craving coffee. This Low Dose Naltrexone business is an unexpected blessing!"

" I've had fibromyalgia for 20+ years, and was diagnosed shortly af ..."    read more »

" I've had fibromyalgia for 20+ years, and was diagnosed shortly after the tender point criterion was established. For years my MD prescribed antidepressants for the pain and every time I took them I gained more and more weight. I started having flares more frequent and severe, as the years went on. I had tried every FDA approved drug available, but could not tolerate the side effects. I feared I would need to go on disability since it was getting harder for me to work as a research nurse. I learned of the Stanford Study on "Patients Like Me". LDN made perfect sense to me and I had worked with cancer patients and humor therapy years earlier. I started on LDN 4.5mg 2 months ago, and I got my life back. The morning after my first dose, I woke up refreshed and able to stretch. I knew I had experienced restorative sleep for the first time in years. That first week I was able to go out after work for the first time in 5 years. I continue to get better with each passing day. I can now walk 2 miles and swim for 30 minutes. I’ve reconnected with friends and have had fun filled weekends. Prior to LDN I spent all weekend recovering, so I could go back to work the next week. I can now complete sudoku puzzles with ease, a skill that I had lost over the last few years. My brain fog has lifted, I no longer need pain killers, muscle relaxers or sleep medications. "

" I was diagnosed with Hepatitis C in 2002 but have probably been i ..."    read more »

" I was diagnosed with Hepatitis C in 2002 but have probably been infected since the early 1970's. I chose not to do the current interferon/ribavirin treatment and have managed the virus through lifestyle changes, supplements and diet. My biopsy in 2003 showed inflammation and "fatty liver" and my HCV genotype was 1b, the most resistant strain to treat. I saw Dr. Berkson at his clinic in New Mexico early in 2009 and was placed on 3 mg. LDN that I took every night before bedtime. I am on a gluten/dairy/yeast-free diet. I had my first lab work done about 3 months after I started the LDN. My HCV viral load dropped from over a million to 48,000 - my ALT dropped from 174 to 22 - my AST dropped from 100 to 30 and all of my other liver function tests were normal. An abdominal ultrasound done showed "normal liver function" with no mention of "fatty liver". In my most recent labs, my viral load has been as low as 18,500 and on my last test was at 37,000. And my ALT/AST are both normal as are all of my other tests. I recently increased my dosage to 3.5 mg - in the past few months, I also did not take the LDN every night. Now, I take it most nights but sometimes skip a dose. And other than initial sleep disturbances, there haven't been any bad side effects. I would recommend LDN to anyone with any form of Hepatitis. I wrote about my LDN experiences on my blog at: http://nolahepper.blogspot.com/ and belong to an online support group for folks with various forms of liver disease. We are maintaining a database of "before" and after" LDN labwork - the 17 entries include HBV, HCV, autoimmune hepatitis and PSC results - it is at: Hepatitis Children & CAM Alternatives "

" Since the age of 13 I have suffered from chronic autoimmune disea ..."    read more »

" Since the age of 13 I have suffered from chronic autoimmune diseases of which the underlying cause was Ank Spon (Ankylosing Spondilitis). I primarily weathered attacks of Psoriasis, Ulcerative Colitis, Iritis, Fibromyalgia and, of course, the all pervasive Ank Spon as well as other autoimmune diseases which my GP said didn't really matter (given the broad spectrum of the primary attacks). Consequently I endured a reasonable level of pain and discomfort for many years. Prior to LDN I was on daily doses of Tramadol and Mobic (having just refused to stay any longer on Methotrexate and, prior to that, Prednisone). Due to the Ank Spon I was very hunched over and unable to drain any drink given to me without a straw. My last measured lung capacity (some 10 years ago) had dropped to 45% and definitely it was much lower than that last year. After 36 years of questionable medical attention (*big grin*) a friend of mine pointed me to LDN therapy. I started it on the 16th of April 2009. After the first dose I awoke 4 hours later in a startled state : it sounded like a huge wind had started up outside. After a few groggy minutes I realised it was the sound of my breathing that had awoken me. For the first time in decades my lungs had opened up and I was able to breathe deeply! 4 days after that, I awoke on the morning of the 20th of April and realized that the Ank Spon, my constant companion of 36 years, was in remission. That will be exactly 12 months ago in a few weeks. LDN has changed my life. I am now 50 and I now have a life!! Yippee for LDN!!! Geoff Harris, PhD."

" I was diagnosed with MS two weeks before my 40th birthday, what a ..."    read more »

" I was diagnosed with MS two weeks before my 40th birthday, what a present! My husband and I went to my Dr. together we were scared not sure what this disease would do to me. After all the testing was done my Dr. gave me information on the injectables, we decided I should start the Avonex. As the years went by my symptoms worsened, the pain was unbearable, the fatigue was horrible, and the depression was growing. Along with other symptoms MS was slowly robbing me and my family of my life. I started on vicodine for the pain eventually ending up on morphine and more pills for various other things that were going wrong. It got to where the nurses in the ER room knew me by name. I was giving up on life, I felt my Dr.'s had failed me, the drug companies were making thousands of dollars off me and my insurance company was getting rich off my high premiums. My husband was in a chat room and everyone was talking about LDN, we took the information to my Dr, she said absolutely NO. I was angry it had helped thousands of people already why couldn't I try it? I was devastated, I was hoping to get my life back. Where there is a will there is a way. Oct. 30, 2005 I took my first LDN pill. Since I had been on opiates for a number of years I had to detox, that was the hardest month of my life. After a week I was about to throw in the towel but my husband and nurse kept telling me it would all be worth it. It was worth it, Sept. 8, 2009 was my one year anniversary working. I'm off disability, off all the other evasive drugs, haven't been in the ER in 4 years and have my life back! Dr. Zagon has discovered a "Miracle Drug" - for Dr.'s to tell people NO you can't have this drug is wrong... Dr. Zagon told me in one of our conversations one time "Vick you have nothing to lose by trying LDN and it won't hurt you". The way my life was going by now I probably would be in a wheelchair and who knows what else would be wrong it saddens me to think back on those days, 10 yrs lost for nothing"

" I live in Saskatchewan Canada I am a 47 year old male. I have had ..."    read more »

" I live in Saskatchewan Canada I am a 47 year old male. I have had RRMS for almost 3 years now. I was on Rebif up until 9 months ago when I started LDN. I finally found a doctor that is prescribing it to other MS patients. She prescribed 4.5 mg for me and sent me on my way. I stopped the Rebif injections, it was my own decision. Reason being is that LDN promotes the immune system and Rebif suppresses it. I did not want that internal battle going on within my body. My symptoms at the start of me taking LDN were: I had cold numbness in my hands and feet, to the point that it was painful to wear socks and shoes and gloves or mitts. I also had the sensation of bands around both of my knees. I also had a sinus infection at the time of starting LDN. I also had no energy and was full of aches and pains. My mental awareness and thinking skills were diminishing. In general my health was maybe 50% of what it was prior to the start of ms. Within 3 days of taking 4.5 mg of LDN I noticed improvements in my hands and feet and the bands around my knees were gone. My sinus infection was gone in 3 days with no other medication other than LDN. My general health and mental awareness strongly improved. After 1 week on LDN I was a new man. I went from feeling like I was an 80-year-old man getting close to a wheelchair to a 30 year old man full of energy and excitement. I became alive again and got out and was able to be "Normal". My wife says to everyone now I can't keep up to him it's wonderful. It is 9 months now since starting LDN and my hand and feet are almost numb free and I have had no side effects from using LDN. In the 9 months I have not had the flu or a cold. I know that I will be on LDN until there is a cure. LDN has changed my life forever. "

" I began LDN in July of 2009 hoping that it could improve multiple ..."    read more »

" I began LDN in July of 2009 hoping that it could improve multiple conditions ~ Epstein-Barre, Interstitial Cystitis, chronic/active Shingles (nerve damage/muscle wasting), Esophageal spasm, chronic Torticollis, Severe Reactive Hypoglycemia, Reynaud's, Mast-cell Asthma, allergies and severe reactions to many substances, Fibromyalgia, Chronic Fatigue, Adrenal Fatigue, MVP, Thyroid disease, partial seizures, Ocular Rosacea/Meibomian Gland dysfunction, etc... I have been severely ill since 2001. The onset of most of my conditions happened in 1986-88 after a bout of Mono. Until 2001 everything was mostly in remission, but after living in S. China for a time, all of my conditions began to strongly manifest. By October 2009, I was up to the 4.5 maximum dosage, and by November I began to feel unnaturally well. I have continued to improve -- strong enough to shower 3-4 times a week instead of 1 time, for example. I am much more physically active, have lost most of my brain fog. My word-finding is much better for example. I feel, for the first time since 2001, that I am getting my life back! I thought I never would. I am even applying for a job!"

" I was diagnosed with RRMS in 2000 at the age of 52 and for nine y ..."    read more »

" I was diagnosed with RRMS in 2000 at the age of 52 and for nine years, took a daily shot of Copaxone, costing $2600 per month. In the spring of 2009, I lost my health insurance since I have a pre-existing condition, and could not pay for Copaxone. I thank my lucky stars, since with a bit of internet research, I found Low Dose Naltrexone which costs less than $20 per month. The price is not the important thing, since there is no price you can put on health, but the fact that it is cheap is exactly why you have never heard of it. There is no profit in recommending it, either for the pharmaceutical companies, or the doctors, since they get their information from those same pharmas. I started LDN on May 1, 2009. Almost immediately, the awful fatigue and depression started to lift. By the middle of June, I was able to ride a horse for the first time in years. Over the following months, each symptom, from numbness and tingling, to weakness in walking, to mental fog, and finally the last to go was the horrible heat intolerance that used to lay me out for days after only minor overheating. I am so appreciative to those who continue to encourage the use and research into LDN. It is not too strong to say that IT SAVED MY LIFE. There are movements out there fighting for our right to buy and use a drug that actually helps so many sufferers of auto-immune diseases. These include Multiple Sclerosis, Crohn's Disease, Irritable Bowel Syndrome, Chronic Fatigue Syndrome, FibroMyalgia, certain types of Cancer, and research even shows that realigning the immune system can slow down the development of HIV into AIDS. The question is not, "will it cure me?" but, "what have I got to lose?" It is cheap, has no bad side effects, can be used with most drugs other than narcotics. It is proving to halt many illnesses in nearly all cases. It is also reversing some of the symptoms for many of us. So what have you got to lose? Until there is a cure, there's LDN."

" My son has had PSC/UC since the age of 1 yr. He had had an ulcera ..."    read more »

" My son has had PSC/UC since the age of 1 yr. He had had an ulcerative colitis rash his entire 14 year existence. This rash could be very painful and scarring. March 2009, even though he was asymptomatic his colonoscopy showed chronic and acute inflammation of his colon. He was prescribed Asacol, a drug that is not good for the kidneys or liver, yet it is still used in PSC/UC children. Not being able to find a gastroenterologist knowledgeable about LDN, I did a phone consult sending all my son's records in and he was prescribed 4.5 mg Naltrexone. The first shocking feature was my son's rash of 14 years went away in two weeks when physicians had not been able to treat it for 14 years. Next, my son has anaphylactic type peanut allergy. I ate a peanut M&M in the room with him and he did not start coughing begging me to stop. This was not the usual! Well, I was afraid if I told the gastroenterologist that he was only being treated with LDN, I let her think it was Asacol. My son had his March 2010 colonoscopy and the gastroenterologist was beaming at how good his colon looked, giving me my copy of color photographs. I cried, hugged her and blurted out, that I had not given him one single Asacol for a year. This was all due to Low Dose Naltrexone. She asked me to send her all the information and I did. I hope that soon this will be available to every child suffering from Ulcerative Colitis or Crohns. "

" I'd not felt well for some time before the pain of RA began in au ..."    read more »

" I'd not felt well for some time before the pain of RA began in autumn 2008. In 2002 they found I had osteoarthritis in the neck, they found cataracts (both replaced - first in 2002, second in 2004) and then they found drusen in both retinas, though my sight was still excellent. During 2005/2006 I began to feel weak and avoided physical effort if I could. I assumed I was ageing (I'm now 67). In December 2008 the GP said my swollen and painful hands and wrists were not age-related. She put me on a short course of prednisone, and another in January 2009, then a 3rd, longer course of a month in February. The 3rd course helped a bit for a week or so and I had a huge, temporary burst of energy. Along with the RA pain, my vision had begun to distort as well. By then I'd begun to learn about auto immune diseases and LDN and I decided I'd not take immune suppressants. I'd seen a specialist - sero-negative and x-rays showed "moderate" joint damage etc. The pain was spreading to my feet, ankles and knees. On 1 April, 3 weeks before starting LDN, diarrhoea started and persisted. End June I ended up in hospital for 4 days and they found colitis and a small, benign carcinoid tumour at the end of the small intestine. In hospital again end August (low potassium, weight loss) and 2 octreoscans were arranged for November. These showed that by then there was no trace of any carcinoid in my body. The RA began to decline immediately with LDN. Today deformation is much less and I have no pain. After 10 months I still feel improvements going on. To my surprise my sight is also better - probably back to 90% plus what it was. I was taking low dose aspirin for a blood disorder - I've stopped it and so far my blood tests are better. I'll have to tell the hematologist when I see again him in June. I take some supplements and the SCD diet (no cereals, etc.) to try to heal my guts as they're still not always 100% better. Otherwise LDN is my only medication. "

" In the early part of 2006 I was diagnosed with NSCLC, inoperable ..."    read more »

" In the early part of 2006 I was diagnosed with NSCLC, inoperable as there was lymph node involvement in my mediastinum and neck. I was given palliative (not curative) chemo, a cocktail of Cisplatin and Carboplatin, about eight rounds, and the same of radiation which I suffered with due to the very nature of it, the treatment damaged my lungs. It is true to say I responded well to the treatment, but I was told I had less than a one per cent chance of making it and was also told I had six to 12 months to live. I eventually found out about LDN - the internet can, if used wisely, be a wonderful tool!! I did not take LDN initially as I was awaiting hip surgery and was wary of the doctors giving me opioids whilst I was 'out of it...' For whatever reason I was also a little scared of it, but I read as much as I could to satisfy myself and convinced my family doctor to prescribe it for me. He was a little hesitant at first but knows I come from a medical background and so he agreed. It has been well over two years now since I started taking LDN and my oncologist is surprised at my progress, I still show No Evidence of Disease at scans etc. I am now four years post diagnosis. I wish to thank all of you who brought LDN to the notice of the world, you are great people! Celia"

" I've been taking LDN for over a year now for Fibromyalgia and hav ..."    read more »

" I've been taking LDN for over a year now for Fibromyalgia and have seen a 75% to 85% reduction in pain plus increased energy and less fibro-fog. I've also been able to decrease my medication for my Restless Legs Syndrome to 25% of what I was on previously. While LDN isn't a cure and does take a while to start working for some people, it can make a tremendous difference in one's life. I'm no longer mostly bedridden, I no longer need a walker to get around and I can even walk up and down the three stairs leading into my house again. I think everyone should at least try it. While there may be a few minimal side effects at first because of the increase in endorphins, when your body gets used to this, you will start to feel better again in so many small ways. What have you got to lose?"

" My husband Michael is 48 years old and was diagnosed with RR MS ..."    read more »

" My husband Michael is 48 years old and was diagnosed with RR MS less than 6 years ago. His neuro wanted him on Avonex straight away. After we researched it and decided the negatives outweighed the positives we found out about LDN online. We printed up loads of info, presented it to the neuro and told him that we wanted a 6 month trial of LDN before even thinking about any other drugs. He agreed (eventually!) and Michael has been on LDN ever since, coming up to 5 years now. He has annual MRI`s which show NO DISEASE PROGRESSION, and some of his previous lesions are gone. The LDN did not correct any of the damage he incurred before he started it. He has slight balance problems, cognitive issues and fatigue that comes and goes. He still works every day in a physically demanding job and has no intention of stopping any time soon! He tries to eat healthy and avoid stress. He does yoga at home and tries to keep his body strong. The neuro still tries to push the CRAB drugs on him now and then - we just laugh. He has no intention of stopping LDN. His general heath is great and he rarely gets even a cold. It`s easy and affordable and the annual bloodwork show no toxicity in his liver or anywhere else. If it wasn't for others posting about their experience with LDN I would never have found it so I try to pay it forward always, and help to enlighten others."

" I'm taking LDN since Sept 2007 for my multiple Sclerosis. It is l ..."    read more »

" I'm taking LDN since Sept 2007 for my multiple Sclerosis. It is like I was born again. before LDN I was on many medications for MS with terrifying results. I was always tired, without balance when walking, with the continuous sensation of getting worse every day. Since when I started LDN all the things changed, I restarted going to teach karate in my gym, went back to work without a problem and have restarted going out for shopping in the general markets. "

" Bentley Lyon started using LDN October 2004. We believe it has s ..."    read more »

" Bentley Lyon started using LDN October 2004. We believe it has saved his life and continues to be an essential part of his overall healthcare regimen. May 14, 2004, Bentley Lyon almost lost his life and was paralyzed on his left side due to a massive hemorrhagic stroke during Deep Brain Stimulation surgery for Parkinson’s Disease (PD). During the summer he slowly recovered the use of his right side, but suddenly it seemed that his PD was worsening. When the muscle tension from the Rigidity caused by his Parkinson’s began to cause his breathing to shudder, we knew that combined with the stroke it could kill him. Our options were limited, and so we finally decided to take a chance on an off label usage of a drug called naltrexone in low dose form (LDN). Within two days, Bentley’s muscle tension began to subside and his breathing returned to normal. His back and neck pain were relieved and the arthritis in his hip was no longer painful. Over the next few months, many of the Parkinson’s symptoms dissipated and he was able to lower his PD medications by more than 60%. Prior to starting LDN, his daily medication for Parkinson’s was 10 Sinemet 25/100, 3 Permax .25mg, 2 Artane 2mg. Today his daily medication for Parkinson’s is 4 to 5 Sinemet 25/100, no Permax, 1 Artane and 4.5mg LDN. Please Join us in our fight for recovery from PD at http://health.groups.yahoo.com/group/healingparkinsons/ We discuss all medications, therapies and interventions that can help heal Parkinsons. This includes medications, both on and off label usages like LDN or Low Dose Naltrexone, therapies such as; Hyperbaric Oxygen Therapy,Stem Cells, Massage, Acupuncture, Light, BPM, Excercise, Swimming, Bicycling, Physical, Music, Speech, surgical options such as; deep brain stimulation (DBS), CTOS and important basic good health practices such as nutrition and supplements, hydration and sufficient rest and sleep. "

" I suffered from relapsing/remitting MS for 12 years before findi ..."    read more »

" I suffered from relapsing/remitting MS for 12 years before finding out about LDN. I wish I would have known earlier. I tried almost every treatment there is and suffered all the horrid side effects which I think are sometimes worse than the disease. When I finally did some self-research and came across LDN, it sounded too good to be true. But out of desperation, I said give it a go. I found a doc to prescribe it, and within 2 weeks I felt so much better, I couldn\'t stop smiling. I am now off my cane, I no longer limp. Unlike before, I now look forward to each new day. Thank you Dr. Zagon and your team for what you did for me. You certainly don\'t reap any profit from this discovery, so may G-d bless you forever."