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Patient Stories

In the interests of promoting further research into different uses of LDN, we encourage LDN users who are willing to be identified to share their experiences with LDN.

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Search by diseases:

Total: 75
    MR

    Background Patient

    Diseases AutoImmune (general) , Pyoderma Gangrenosum

    Date of Posting: April 16, 2019

    Posted By: Mrs. Michele Romano

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: UK

     

    How LDN Helped Me

    On 9/3/17, which was a Thursday, I woke up to find the back of both my hands and wrists looking like they had a heat rash...or as if I had rolled in nettles. By the following Monday, it had spread up my arms. It was scaly and felt like fire ants were...
    JM

    Background Patient

    Diseases Rheumatoid Arthritis

    Date of Posting: April 10, 2019

    Posted By: Ms. Janice Marshack

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: USA

     

    Highly effective for RA & Fibromyalgia

    I was diagnosed with Rheumatoid Arthritis (RA) in 2006 as well as other autoimmune issues. The pain from the disease has been progressing over the years and I have tried all prescribed medications from NSAIDS to immune suppressants to NO avail. I hav...
    SP

    Background Patient

    Diseases Chronic Back Pain , Chronic Pain , Hashimoto's

    Date of Posting: April 07, 2019

    Posted By: Mrs. Sheron Pearson

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: New Zealand

     

    Hashimotos & Pain

    I've had hypothyroidism since early 90's and was on eltroxin/thyroxine. I was never told I had Hashimoto's but learnt about it online and asked my doctor to do antibody testing. She said that if the testing was done and the antibodies were high, the ...
    MF

    Background Patient

    Diseases AutoImmune (general) , Pericarditis

    Date of Posting: March 24, 2019

    Posted By: Ms. Monica Farrell

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: USA

     

    recurrent severe pericarditis helped by LDN

    After suffering from debilitating pain for more than 6 years due to autoimmune pericarditis, thanks to LDN I have my life back. I went from a pain level of a zillion to 0...in around 10 days of starting LDN at 2 mg dosage....
    Smokey Charis

    Background Medical professional

    Diseases Crohn's Disease

    Date of Posting: February 26, 2019

    Posted By: Ms. Smokey Charis

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: New Mexico

     

    No more Crohn's!

    In late September of 2017, I was diagnosed with what was thought to be a bowel obstruction. After many CTs, MRIs, and a swallowed camera test, the diagnosis was changed to late onset Crohn's. My GI doctor wanted me to start Remicade which I refused a...
    JN

    Background Patient

    Diseases Hashimoto's , Polymyalgia Rheumatica

    Date of Posting: February 12, 2019

    Posted By: Mrs. Jeanette Nation

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: Apopka

     

    LDN helped me

    The autoimmune cascade began in my 30's with Hashimoto's. No big deal, right? Just take thyroid medicine rest of your life. Then in my 50's I was diagnosed with polymyalgia rheumatica (PMR), and then Pernicious Anemia. Also I have a history of sinusi...
    JS

    Background Patient

    Diseases Hashimoto's

    Date of Posting: January 22, 2019

    Posted By: Ms. Jane Saville

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: Utah

     

    Controlling Hashimoto's

    I wanted to let you know that after finding out I had Hashimoto's I did research and started taking 1.5 mg of LDN and my Armour thyroid. The problem corrected in short order and I have continued on the same regimen (Armour thyroid 60 mg and LDN 1.5 m...
    EC

    Background Patient

    Diseases PPS (Post-Polio Syndrome)

    Date of Posting: November 26, 2018

    Posted By: Mr. Edward Cassidy

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: Western NY, U.S.

     

    Post-Polio Syndrome

    I have taken 4.75 mg LDN for post-polio syndrome for about 10 years. While my balance has gradually worsened and I'm somewhat less mobile, the LDN has decreased fatigue and I believe it has slowed the progression of symptoms. I'm wondering if there a...
    BR

    Background Patient

    Diseases BFS (Benign fasciculation syndrome)

    Date of Posting: September 27, 2018

    Posted By: Mr. Bill Ruhnke

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: New York

     

    BFS twitching reduced with LDN

    3mg/day of LDN reduced my fasciculations (twitching) significantly. Without LDN, twitching in my lower legs was so severe I was unable to sleep. After 3 months of treatment with LDN, I was able to stop taking it, and BFS symptoms remained very mild ...
    Sandy Burkett

    Background Patient

    Diseases AutoImmune (general) , CVID , Pancreatitis , Sjogren’s

    Date of Posting: August 07, 2018

    Posted By: Mrs. Sandy Burkett

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: Pittsburgh, PA. USA

     

    LDN...A Family Affair

    Mother, daughter and Cat...we're all on LDN! It started with the grown daughter (myself) who has suffered for many years with a severe immune deficiency (CVID) and autoimmune condition (Sjogren's Syndrome). Because I facilitate a Sjogren's Syndrome S...