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Patient Stories

In the interests of promoting further research into different uses of LDN, we encourage LDN users who are willing to be identified to share their experiences with LDN.

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Search by diseases:

Total: 68
    EC

    Background Patient

    Diseases PPS (Post-Polio Syndrome)

    Date of Posting: November 26, 2018

    Posted By: Mr. Edward Cassidy

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: Western NY, U.S.

     

    Post-Polio Syndrome

    I have taken 4.75 mg LDN for post-polio syndrome for about 10 years. While my balance has gradually worsened and I'm somewhat less mobile, the LDN has decreased fatigue and I believe it has slowed the progression of symptoms. I'm wondering if there a...
    BR

    Background Patient

    Diseases BFS (Benign fasciculation syndrome)

    Date of Posting: September 27, 2018

    Posted By: Mr. Bill Ruhnke

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: New York

     

    BFS twitching reduced with LDN

    3mg/day of LDN reduced my fasciculations (twitching) significantly. Without LDN, twitching in my lower legs was so severe I was unable to sleep. After 3 months of treatment with LDN, I was able to stop taking it, and BFS symptoms remained very mild ...
    Sandy Burkett

    Background Patient

    Diseases AutoImmune (general) , CVID , Pancreatitis , Sjogren’s

    Date of Posting: August 07, 2018

    Posted By: Mrs. Sandy Burkett

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: Pittsburgh, PA. USA

     

    LDN...A Family Affair

    Mother, daughter and Cat...we're all on LDN! It started with the grown daughter (myself) who has suffered for many years with a severe immune deficiency (CVID) and autoimmune condition (Sjogren's Syndrome). Because I facilitate a Sjogren's Syndrome S...
    Rose Dandaro

    Background Patient

    Diseases Hashimoto's

    Date of Posting: May 30, 2018

    Posted By: Mrs. Rose Dandaro

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: USA

     

    Hashimoto's tamed

    I was diagnosed with Hashimoto's in 2012. But I believe I had it since my daughter was born in 1994. Brain fog and joint pain were the first signals, but I ended up two decades later with extreme fatigue, a brain that didn't work properly and body pa...
    CT

    Background Patient

    Diseases Alcoholism

    Date of Posting: May 16, 2018

    Posted By: Mrs. Cindy Tedsen

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: Upstate New York

     

    16 years sobriety

    Sixteen years ago I was having trouble staying sober. Fortunately I had a counselor that was smart enough to know that LDN would help with the cravings. I now just celebrated 16 years of sobriety! The LDN assisted because it helped me in the beginnin...
    ES

    Background Patient

    Diseases Raynaud's , Sjogren’s

    Date of Posting: May 14, 2018

    Posted By: Mrs. Elizabeth Smith

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: Jadwin, MO USA

     

    LDN Helped My Sjogren's Autoimmune Disease

    I have apparently had Sjogrens for years, having dry eye and dry mouth always and not realizing what it was. I had the symptoms of rheumatoid arthritis (RA) and went to a specialist who tested me and found I had Sjogrens. That explained my dry mouth...
    LG

    Background Patient

    Diseases AutoImmune (general) , Rheumatoid Arthritis

    Date of Posting: March 03, 2018

    Posted By: Ms. Lisa Gilbert

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: Fort Lauderdale

     

    9 days on LDN changed my life

    I have been suffering with gastrointestinal issues for 2 years, and it morphed into an autoimmune disease. I’m now suffering with joint and bone issues, including broken bones and surgeries scheduled. I talked my rheumatoid arthritis doctor into p...
    Valborg Engene

    Background Patient

    Diseases Fibromyalgia

    Date of Posting: February 23, 2018

    Posted By: Mrs. Valborg Engene

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: Oslo

     

    LDN has helped me a lot

    I use 3 mg naltrexone for fibromyalgia, and have done so for some years. It has given some life back for sure. Now I have energy every day, and that means a lot. I have stopped taking it for some periods to see what happens (several times to be sure)...
    JM

    Background Patient

    Diseases MGUS

    Date of Posting: January 29, 2018

    Posted By: Mr. John F. Morgan

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: Dalton, GA

     

    MGUS didn't evolve into Multiple Myeloma

    Seven years ago, because of neuropathy, my doctor sent me to the oncologist. I was aware of LDN so immediately got a prescription for Naltrexone after printing a dozen pages for my GP. I make my own dose by water dilution to 4.5 mg. For 7 years I hav...
    BH

    Background Patient

    Diseases Restless Legs Syndrome

    Date of Posting: January 23, 2018

    Posted By: Ms. Bobbie Head

    Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

    From: Alabama

     

    LDN worked for my restless leg syndrome

    I was having a huge problem with restless leg syndrome (RLS) for months and tried everything, even herbal. I went for my yearly checkup to my gynecologist and told her about my RLS and she gave me a prescription for LDN and from the first night it wo...