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Ruth's "miracle": Fibromyalgia relieved and tough skin disorder 99% gone with LDN

Ruth Eisenberg
November 01, 2016

Fibromyalgia:

Fibromyalgia is a painful and mysterious condition. Symptoms include chronic pain throughout the body, sensitivity to physical pressure, drowsiness, numbness, depression, and memory problems. Around 5% of the population suffers from fibromyalgia, with twice as many women affected than men. Read more here.

Lichen Sclerosus:

Lichen Sclerosus is a chronic skin condition that typically affects the genital and anal areas, and sometimes appears on the breasts, upper arms, and upper body. It begins as small white shiny spots on the skin that can grow into bigger patches. Affected skin can easily tear and become scarred, and appear as red or purple bruises. Common symptoms are: itching, pain/discomfort, bleeding, and blisters.

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What is the history of your conditions?

In 1990 my family and I were involved in a head-on collision. I suffered a severe brain concussion, a fracture of my left femur, two fractures of my left ankle, fracture of my right clavicle and was generally beaten up. My husband and children were all injured in various degrees, and our five month old baby daughter had been killed instantly during the accident.

Fourteen months later, I developed fibromyalgia. Six years passed and four more girls arrived, before I was diagnosed. I suffered widespread pain and no analgesic gave me relief. I was often in a poor condition, though I somehow managed to care for my home and my eight children, who have enriched my life greatly.

I also developed Lichen Sclerosus (LS), a skin condition that developed above my breasts and in my genital area, about six years ago. The skin itched intensely. Then, sexual relations also became painful due to cracked skin, and bowel movements became excruciating (the pain of going to the bathroom had a strong association with giving birth). These symptoms were a daily annoyance. I started to fear having sex and had to use laxatives to try to make it tolerable to go to the bathroom.

For the fibromyalgia, I tried all the conventional drugs prescribed for the disorder, including antidepressants. Even if a drug did give some relief, the side effects were intolerable.
What treatments/approaches did you try first and how did they work for you?

For the LS skin condition, I was prescribed strong steroid cream, but I didn't want to continue using it, since I was familiar with the potential for long term side effects. Instead, I used coconut oil, which eased the symptoms to some degree, but didn’t resolve the condition. For the fibromyalgia, over time I tried all the conventional drugs prescribed for the disorder, including antidepressants. Even if a drug did give some relief, the side effects were intolerable. In the end, I gave up using all the medications and started researching healthy lifestyles, natural healing sources, etc. I've prayed a lot to be led on the right path through the jungle of information and offers of ‘miracle cures’.

I told my family doctor that I would like to try LDN.
What has been your experience discussing LDN with your healthcare providers?

I wrote to my family doctor and told him that I would like to try LDN. He answered me that it is a medication used for drug abuse. He didn't research it. I then printed out information about LDN and gave it to him (including information from a pain clinic prescribing it for fibromyalgia). He is a good family doctor, but he is not comfortable dealing with something he is not familiar with, so he preferred I consult with specialists about LDN. I found a pain clinic a 20 minute drive from me and my family doctor referred me there. The specialist there (an anesthesiologist) had already treated close to 100 patients with LDN, and I had no problem getting a prescription from him. That was in November 2015, and I still see him every few months for evaluation.

It’s time to
us
When did you start LDN and what was your experience?

I started LDN the 25th of November 2015. I felt an immediate response from day one, feeling lighter in my mood, more awake and less tired. My pain level decreased and energy level increased daily. I started to sleep better and wake up with a feeling of happy expectation for the day. (Previous to LDN, I had severe sleep disturbances for many years and never woke up feeling refreshed.)

I felt an immediate response from day one, feeling lighter in my mood, more awake and less tired. My pain level decreased and energy level increased daily.

At Christmas time that year I was able to do so much more than I've been able to for years and the feeling was wonderful.

After New Year’s, I had a setback, but I think it was because I had been overdoing things in my excitement. Additionally, in the first few months when I’d escalate the dose, I usually had a few days with a slight headache. But I'm used to migraine headaches, so this wasn't really a problem.

I can testify that LDN has given me a new life…not a life completely without pain and exhaustion, but a life where I can function without feeling like I have to climb a mountain.
What are the biggest changes in your life since starting LDN?

Regarding my fibromyalgia, I can testify that LDN has given me a new life…not a life completely without pain and exhaustion, but a life where I can function and do my daily chores without feeling like I have to climb a mountain. I don't dread upcoming events; I know I can manage. I still have to be a wise steward with my resources and not overdo things, but I have hope that my condition will still improve. My condition has been bad for so many years, so I know it takes time to build up my strength again and for the body to repair (not to mention the damage over the years that conventional medicine has done). I know that patience is needed, but so far I'm very happy and grateful for the changes that have already occurred.

After 11 months of LDN, my skin condition has healed 99%. To me, that is nothing short of a miracle!

In addition, after a few months of LDN, I started to notice an improvement in my Lichen Sclerosus. This was an unexpected and amazing positive side effect. Now after 11 months of LDN, it has healed 99%. To me, that is nothing short of a miracle!

BEFORE AFTER

What dosage of LDN did you start with and did it change over time?

I started taking 0.5 mg, as I had read about the benefits of starting low. Thankfully, the pain doctor gave me freedom to increase the dose at whatever rate made me feel most comfortable. I increased the dose 0.5 mg every week. I experienced gradual improvement until 4.5 mg, the dose at which I stayed for a number of weeks. I felt there was still room for improvement, so I told my pain doctor that I would like to increase my LDN slowly, as long as I still had improvement with each increment. I definitely experienced more improvement as I went higher. It's been about 4 months since I increased the dose beyond 4.5 mg. The last 2 months I've been on 12 mg/day*. I'm still not sure, though, at which dose I feel best.

Is there anything special that you'd like others with your condition to know about LDN?

I encourage everyone with my conditions or with chronic pain of other origin, with cancer, with all kinds of autoimmune conditions, with autism, depression and psychiatric diseases/disorders to give LDN a chance. The benefits of LDN are far greater than what we can imagine and since there are virtually no side effects there is no reason not to fight for it.

I encourage everyone to learn as much as possible about LDN so that you have a solid foundation if any arguments arise while trying to get a prescription. Don't give up until you get it. It's so worth it!



*LDNscience.org notes that, traditionally, low dose of naltrexone is considered to be under 10 mg. Due to individual metabolic rates, some patients may benefit from a slightly higher dose, and Ruth is an example of that.

More About Ruth:

I'm a 60 year old woman and a registered nurse on early retirement. I live with my husband and the youngest 4 children of eight in Copenhagen, Denmark, surrounded by our 8 grandchildren and a host of precious friends. I’m thankful for my life! If you have any questions, you may contact me at [email protected].